
01-06-2009, 01:59 PM
So for about the past month I've been having these episodes where I just kinda go comotose for about 1-5 minutes. I mean. I'm awake. I can see I can think....but I can't really do much of anything else unless someone calls my name or does something to snap me out of it. It's like my brain is going really really fast and I can't move. Along with it I've been having headaches, my vision goes blurry and... well I guess the strangest thing is that I get what feels like air trapped between my skull and my skin and it "flutters". It's been in other places too, but that's the strangest and most noticable.
I went to the doctor the other day. Because the episodes started happening while I was driving, working and even having sex... it freaked me out and so they did a CT scan yesterday, got some blood and urine from me and tested pretty much everything psysiological that they could. It all came back clean. I get Indian health care and, while the care itself is free, if they don't have the resources to handle something it gets sent to what's called "contract health". They have to approve it through a board and then they send me to another hospital to get it all taken care of.
The doctor thinks I'm having petite mal seizures and wanted to contract me out for an EEG because they don't have the equipment there. There's a possibility that the comittee that decides these things will reject it and then I'll be up a creek with no paddle. The EEG will tell me what's causing the seizures so they'll stop. I'm kind of afraid though... what if it doesn't get approved? I don't have health care through my work because I'm technically still a contracted help. Our contract company doesn't have a very good health care package at all...so I didn't bother getting it because I didn't think I'd need it. I've never had to get anything contracted out with the exception of the ultrasound when I was expecting my son.
On top of all that mess I've had to worry about what happens if the commitee DOES approve it and they find nothing... my father recently had a grand mal seizure (the one where you collapse and start twitching and curling into the fetal position) and after it happened.. they couldn't find the cause... what if I'm the same way? At the very least I'm less afraid of it being cancer because the CT came back clean. About 4-5 months ago I had a Leep Procedure (where they cut off part of your cervix) because I had the first stages of cancer. At first they thought I could have a tumor in my brain, but after the CT that's ruled out.
I don't know what's going to happen from this point on and quite frankly I'm really frightened. What happens if they say I can't drive? What if I can't work? What will happen to my son? There's so many questions and I don't know any of the answers to them. I know that this isn't something that can get fixed overnight but if anyone has any suggestions for how to cope with the situation or they have similar stories about how they got past rough spots in their medical history I would appreciate if they were shared...
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